See Who We Are

X had a song in the 1990s titled “See Who We Are.”

I’m a mental health activist because I couldn’t accept “business as usual” and the poor treatment of individuals diagnosed with schizophrenia and other mental illnesses.

At first I wanted to be known as a schizophrenia expert and now I prefer the term mental health activist.

It’s because I’ve become wary of the assumptions masquerading as facts that are parroted by so-called experts.

Like that of an “internationally recognized expert” on mental health who regurgitated that no one with schizophrenia could recover. She didn’t go beyond that to give techniques that would help people recover. She didn’t give any ideas she had about how to change the broken-down mental health system. She simply kept stating over and over the same bleak information on schizophrenia recovery that gives no one hope.

I make the case for not stereotyping others. For not assuming things about other people based on how they look, or what kind of diagnosis or other “thing” they have. I challenge that expert to buy one of the homeless people with schizophrenia a hot chocolate on a cold winter day. Instead of writing a news article stating the obvious and not offering a solution for helping individuals with untreated mental illness that go homeless.

To truly see how another person is inside where it counts is a gift each of us should hone. Remember: no human being is a statistic. Take time to see and observe others. Break bread with people who are different from you.

Difference is beautiful. That in the end is why I titled my memoir Left of the Dial: to encourage people to celebrate their difference. To narrate the story arc of the life of a quirky, creative young girl.

Let’s face it: a lot of us have a diagnosis of schizophrenia. Yet rather than deny this or get spooked by it, we owe it to ourselves to accept the diagnosis. It’s a part of our lives. Yet with good medication, therapy as needed, a fitness routine, and a support team, it is no longer a big part of our lives: it’s just something we have, no more than that.

I titled my memoir Left of the Dial because I wrote about music, fashion, books, and friendships. I wanted my book to be about a happy life lived in harmony even with ongoing hardship.

I implore everyone reading this blog who is an outsider, who does not have a mental illness:

See who we are.

There’s a human being experiencing this pain. We’re not nameless faceless shells. Our illness is not the sum total of who we are. We have real lives. We have hopes and dreams and needs and fears and feelings just like everyone does.

See who we are.

VU Meter

I’ve been thinking about my VU meter analogy and the significance of living your life left of the dial: with your feelings and thoughts in balance and everything on an even keel.

A person shouldn’t have to spend days and days and even weeks and weeks depressed or otherwise symptomatic.

Yet one think (er-thing) I’ll talk about here this winter is knowing when to rest and when to get active.

Sometimes we all need to rest for a day here and there. I’m fond of living in a city where there are four seasons: I have the chance to acclimate my body to nature and the changing weather.

I’m the biggest foe of climate change and the rising sea levels and the erosion of marshland and other economically damaging man-made phenomena.

I advocate for getting in tune with the seasons, with the natural world, with living by a park or by greenery if you’re able.

I’m all for whatever effective techniques a person can use to lower the distortion on the VU meter. I champion the natural world that is fast disappearing as money-grubbing agribusinesses and food conglomerates put profits above people.

Illness is not a natural state of being. And all sorts of illnesses are on the rise because companies are in the business of selling fake food.

Ironically, as our natural resources get ravaged, I think too our personal resources become limited.

As cold as it gets in New York City in the winter now I make the case for hibernating when it’s necessary.

I maintain though that lowering the volume on the VU meter can help us live our lives in balance.

The interconnected nature of all these elements I’m talking about is no accident.

I’d love to hear your comments on this.

Life Is Beauty Full

I changed the gravatar or image from my photo to a slogan. You can get this slogan as a wall decal on Amazon.com. I also have a turquoise throw pillow with white letters that proclaim: Life Is Beauty Full.

It certainly is.

Left of the Dial is a manifesto for living well and whole and having a life in balance. “Whole” or “organic” as defined as all the parts coming together naturally.

To be true to yourself instead of pretending to be someone else. To be the one and only you. Not to act false to yourself. Thus: to be natural, to live an organic life where your traits, your thoughts and feelings, your body and mind, your spirit–all co-exist in a true expression of your individuality.

It’s true that some of us might have an ongoing hard challenge, more so than others. I still don’t recommend acting fake. It’s my contention that people in society need to get their act together to have compassion for those of us who were whipsawed by mental illness.

Life isn’t easy living with an illness, yet having self-compassion, and kindness towards others, hot-wires your heart to be open and forgiving about your trials. “Everybody hurts,” not just people with mental illnesses.

The word organic, conveying a natural state, isn’t to be confused with discontinuing your medication. If you need to pop a pill to be in remission or to have a better version of recovery, by all means, take the meds faithfully, every day as prescribed. Talk to your pdoc honestly if you have side effects. Side effects are manageable; symptoms can be disabling.

I’ll end here by telling readers to await and tune in to my HealthCentral website in April when I turn 50. There, I’ll be writing news articles about recovery at mid-life; and about how to cope with weight gain. I’ll also write one article for guys, another article for ladies, about sprucing ourselves up to gain confidence living with an illness.

The Memoir Is Available Now

It was quicker than I expected yet now my memoir Left of the Dial is available on Amazon and will be available elsewhere in about two months.  I expect to have a Kindle e-book version coming out shortly.  You can install a Kindle app on your iPad to download Kindle books to your iPad.

Here’s one review of the book:

“Christina Bruni’s Left of the Dial describes her struggles, achievements, determination and perseverance. Despite being diagnosed with schizophrenia, she weathers the storm, and fights her way through it, earning a masters degree, working full-time as a professional librarian, and becoming a writer and award-winning mental health advocate, using her experiences to aid others. From the outside looking in, her illness is hidden behind her makeup and clothes, but inside she battles with stigma and searches for recognition, love and acceptance. Her story is one of courage. I congratulate Bruni on what she’s accomplished in life and enjoyed her insights and triumphs sewn into her story.”

— Sandra Yuen MacKay, author of My Schizophrenic Life: The Road to Recovery from Mental Illness

Interestingly, my literary agent told me I had nothing to be ashamed of because the memoir was a story of resilience and persistence too. The goal for everyone living on earth is for each of us to not ever feel guilty or ashamed for being who we are and not to feel like we’re inadequate or lacking compared to others.  We must not believe the words of the people who hate and judge us for being different.

I’ve been in remission from schizophrenia for over 22 years.  It’s been decades since I didn’t want to viewed as crazy because I had schizophrenia.  I turn 50 in April and I don’t care what anyone thinks of me anymore.

That’s why I always tell readers in my blog to believe in yourselves when no one else does.  The only power the stigma has over you is the power you give it.

Again: You can buy the book on the Left of the Dial Amazon page right now.

Thank you dear treasured and faithful readers of my blogs for supporting me throughout the years.

Infiniti Auguri:

Endless good wishes to you.

Glad Tidings of Cheer To You

I’m glad the year is ending and the Christmas music will soon be gone from the airwaves.

It’s come about that my memoir, Left of the Dial, will go on sale on Amazon and Barnes & Noble online on New Year’s Day: next Thursday.

As a treat, I will post one last memoir excerpt here on Tuesday. On or near January 15th the Kindle e-book version will be available to install on your device: either on a Kindle or an iPad with a Kindle app.

We had lobster for dinner last night and six other fish for the Night of the Seven Fishes. It’s because my nonna, my Italian grandmother, was Neapolitan–from Naples. The Seven Fishes is a Christmas Eve ritual that I wrote about in the memoir.

Glad tidings of cheer to you. A Happy and Healthy New Year.

2015 promises to be a great year. Mark my words: 2015 will be great.

Making A Left Turn

My question to readers is:

Why should we care about stigma? Why should we live in fear of narrow-minded people judging us for who we are and how we live?

I say: find your tribe. Do your own thing.

Left of the Dial chronicles my early career in the gray flannel insurance field. It was an unwitting detour from the artist’s life in the city that I had wanted to live.

It takes guts. It takes grit. It takes perseverance to arrive at the kind of life that’s perfect for you.

I don’t recommend working at any job that requires a person to have an hour-and-a-half or a two-hour commute each way. That’s inhuman. It gives you no time to establish a fitness routine. It gives you no time to be happy at night to come home for at least an hour to do your own thing.

I realize that the artist types among us are often told: “Be an accountant. Do something practical to earn money.”

I’m here to tell you that you can earn a living doing what you love. Even if you have to work two jobs to afford to pay your rent. So be it. It’s better to be happy than to be miserable.

There are no accidents or coincidences in life. I firmly believe our lives evolve by divine design. It might take a person longer to get to where he or she wants to be. Yet the sweetest victory is often the hardest-won.

Always be hopeful. Not only does hope heal, it carries us through the hard times.

We need to have faith in ourselves. Finding our purpose for being here and then going out and doing that is what the world needs.

The world doesn’t need another person pretending to be someone she’s not just to try to be accepted by others.

Have faith and hope that the tide can turn.

It gets better. Truly life gets better the older you get.

Remember: you don’t have to make yourself miserable in a soul-sucking job just to try to prove you are normal.

There is no normal. Each of us deserves to have a life of our own choosing.

I’ll end her by stating I totally relate to anyone who took a detour in her life because she wanted to prove she was normal.

Yet that’s the quickest route to being unhappy.

A mental illness diagnosis is just a word nothing more than this. It’s just something a person has. It’s a straitjacket on our self-perception only if we let it be one.

Defy the stigma. Do your own thing. You’ll be happier in the long term.

Individuality

In December I will talk about my Left of the Dial philosophy on Tuesdays. Starting today I will give an idea of what I’m talking about.

It goes back to a quotation from the 1990s: “The only power a person has over you is the power you give him.” This too: “The only power a diagnosis has over you is the power you give it.”

Having the courage to be your own person and do your own thing isn’t easy. People in the world who covet being normal–and most people do–are not kind to those of us who are different. We’re shamed, made to feel guilty if we don’t toe the line; if we don’t conform to how others think we should be, act and live. Most likely, those of us who do our own thing threaten others who are secretly envious that we’ve opted out of “the rat race,” that we’ve dared to be ourselves.

The Left of the Dial ethic signals that we can be proud of who we are and celebrate ourselves.

Michelle T. Johnson, the author of The Diversity Code, is quoted to the effect that honoring individuality is the highest form of achieving diversity.

It starts when we dare to be ourselves in a world of fake people; in a word of people competing with each other and pretending to be someone they’re not to get ahead

You don’t have to act trashy to win at the game of life. You can compete in traditional arenas with other people, if you want to and choose to. Yet whatever you do, you don’t have to sell your soul.

Cheers.

Personality Crisis

This comes from the first chapter that recreates the days following when I moved into the halfway house. I don’t recommend anyone do what I did. Instead, research your options and be not afraid to do something different. I don’t think any young person should be shunted into a traditional day program. I’ve formed this stance in retrospect because of my time spent writing the memoir. I do not offer this advice flippantly. Nor do I recommend ditching a treatment plan that could actually work. My contention is that you have to do your research and choose wisely what you do after you’re first diagnosed when you’re young.

The title of the blog entry is a reference to the song title of a song one of the characters was singing on the first day I moved into the halfway house. She and I got out of the system. So few of the others did. It’s all too easy to get led down the wrong path. And true a better option might not exist where you live. It seemed like I had no other options circa the fall 1987.

___________________________________________________

Waking up come Monday morning I heard the Sugarcubes on loud from in that room. This could get very interesting—first punk rock and now Icelandic pop.

I washed my face in the sink, barely removing my eye makeup so I didn’t have to apply it again. It saved time. Today I didn’t want to be late again for the new day program. Ellen sent me to Meadow because she didn’t think I was ready for a part-time job, not even volunteer work, and Rise was meant to be short-term.

Soon I met the woman who liked rock-n-roll. In the kitchen, she made herself coffee, and I poured myself a bowl of Cheerios. Her corkscrew hair snaked out around her face.

“I’m Margot,” she introduced herself, bringing her mug to the table where I sat.

“Chris.” I looked anywhere but at her face.

“I’ll walk with you to Meadow,” she said. It was the second day program I attended.

“Thank you.” I soaked up her kindness.

She wore a red leather MC and motorcycle boots. I coveted her style.

“You live in the room with the music.”

“Yes. I’ve heard your punk. I like it. The woman next to me listens to Slim Whitman.” She rolled her eyes.

I laughed. “I love your leather jacket.”

“It’s an ex-boyfriend’s. I broke up with him and never gave it back.” That was so cool. I knew I’d like knowing her. I hoped this would turn into a friendship. It would satisfy Brett. I’d have an ally in this strange world.

“Let’s go. It’s late.” We placed our cups and bowls in the dishwasher and left.

We walked in silence the five blocks to the building. On arriving, she told me she’s in Level One, the highest rung on the ladder of groups, and walked down the hall. My counselor, Abby, placed me in Level Five, at the bottom. Today I was going to make the case that she elevate me at least to Level Two. I turned the corner and entered the morning group therapy.

Sylvia, a woman with punched-out eyes, applied her face: turquoise eye shadow and fuchsia lipstick. Abigail strummed worry beads and prayed under her breath. My anger was red as a drumbeat. I railed against being in this group because what passed for therapy was usually talk about the weather, and even so, I thought it rude to use the meeting as a beauty parlor.

The therapist, Andre, asked first off if anyone had an issue he or she wanted to discuss, and a guy asked, “Does anybody know why the train was late?”

After we’d gone around about this, a woman with a haunted face wanted to know why it was so cold. “Is there a wind chill factor?” I could see her blue veins through her thin arms.

Burl, a man with lagoon eyes and wild grass hair, stared at me the whole time. I slogged through this session until it was time to meet my counselor for the progress report. Abby ushered me into her office at eleven-thirty, and I took a seat in front of her desk. She was a lavender kind of woman, and I hated pastels.

Here I was at another day program, and I wanted to move faster.

“Why?” I asked automatically. “Why did you put me at the bottom? I’d like to be in one of Margot’s groups. Why can’t I have a goals group and a work-search group?” It was called Life Management, and it was available for those at the highest level, where you could work on planning for the future and what you would do when you graduated the program. As far as I could tell, everyone at the bottom had been here three, four, five years, or more. Though I’d only been here two months, I was itching to get out.

Abby said, “I placed you there because when you first came here, you barely talked and were extremely quiet.”

“How am I supposed to get support if people just talk about why the train was late or how the weather is outside?” I challenged her, and she winced. “Is that what group therapy is supposed to be about?”

Abby caressed the round glass paperweight on her desk. Before she could respond, I continued, “This place is a playpen. It’s a holding pen for people who can’t function on the outside. How is Meadow going to help me? I want out.” I feared the longer I stayed here, I would give up on myself, just like the others had.

“I tell you what. I’ll talk with the other staff, and in three weeks, if we’ve noticed an improvement, I’ll consider moving you up.”

Yes, it was going to happen. I was going to make it happen.

Abby said, “Nice haircut. Keep it up.”

I’d gotten a new style: longer in front, framing my face; shorter in back, with bangs spiked up. I liked it; I did. Kind of a modern bob. It made me look young, even though I didn’t need to look any younger.

She told me, “Next up I want you to work on your makeup and clothes.”

“Fair enough,” I said, though I wasn’t quite ready to take the leap.

“Okay, you can go to lunch,” Abby dismissed me.